Saturday, September 6, 2008
Bessie
Friday, September 5, 2008
SCD Cupcakes
Little Sister, Gift from God
About three weeks ago Ella was sitting on the floor watching an LDS movie. John was bouncing in a laundry basket making his sounds. It was Sunday, a time when John gets overstimulated and needs to let loose...then he tries to hold it in once we get to church.
As he slammed his bottom down repeatedly on the laundry shouting "WHOOOO!!", Ella looked at me. She had a very frustrated look on her face.
"Why does Johnny do 'dat, Mommy?" she asked.
I came and sat on the floor next to her and gave her a hug. She received it like a child should...with arms around my neck and waiting for an answer. I loved this opportunity to teach her.
I whispered, "John has a lot of energy in his body before church. He has to get his wiggles out." She stared over at him, wishing for the bouncing and screaming to stop.
"You're a good helper, Ella. You do a good job with Johnny," I continued. She took a deep breath and went back to her movie, instantly forgiving all of her brother's quirks.
Fast forward. Last night I watched as John and Ella wrestled on the floor. She laughed and giggled as John chased her with a pillow. They rolled on the floor and bear-hugged each other laughing the whole time.
I watched Ella as she interacted with Big Bro. With tolerance and patience she endures it all so well.
John gets a lot of attention. He's the first child, the first grandchild. And for that, he deserves attention. But then when I look at Ella, I remember John would be lost without her. We all would. That's why we cherish her so much.
She sits with us when John is having fits and helps squish him with pillows when he needs it. She even comforts Mom during stressful times.
She may be a little sister, but she's a BIG helper...truly a gift from God.
Thursday, September 4, 2008
Autism and Vaccines...Brace Yourself.
Those are the thoughts that go through my mind before I write anything about autism. Then, like a wave, I get an overwhelming feeling, "You are called to do this."
Whether my mind is just playing games or I really am being compelled, it's better to be safe than sorry. So here it goes: Autism and Vaccines.
Some believe thimerosal, a mercury solution used to preserve vaccines, is a major cause for autism. Back in 1998, Dr. Andrew Wakefield and 12 other doctors did a study on 12 autistic children with gastrointestinal problems. His theory, and I do say theory, was if you give 3 vaccines together there's an increased risk for a bad reaction in the body. He thought there was a connection between BOWEL DISEASE, autism and MMR vaccines.
Well, rather than first attacking the issue of BOWEL DISEASE, the public latched onto an easier idea. Instead of readjusting their food diet, they said, "Let's stop giving our kids vaccines!"
Now, with measles cases rising and risks of death increasing, we are facing a scary situation.
This morning I received a call from Adam about a recent study done at Columbia University by Dr. Ian Lipkin and the Center of disease Control, along with Mass. General Hospital and Trinity College in Dublin. They found no relationship between the timing of the vaccine and the gastrointestinal issues or autism, testing 25 children with GI problems and autism.
Now, it all gets really technical...there are flaws in Wakefield's findings and I'm sure there will be discrepancies in Lipkin's research as well.
Adam and I have been asked numerous times whether we believe John's autism came from his vaccines. Our answer is clear: NO. John's symptom's of autism came from the day he was born. We are certain food has been a huge contributor to his poor mental/physical health. John has had bowel issues since birth. Now, we have literally made our son's diet a science experiment, eliminating foods and watching carefully for reactions.
For some families, this overwhelming...after all we live in a society that has an emotional connection to food. How on earth can we deprive our son of Doritos and soda?
Is mercury OK to put in vaccines? No. The government could do better at making a more natural, absorbing vaccine. We can all work towards encouraging government officials to create safer vaccines.
Tips:
In the meantime, I believe all families with children on the spectrum should try an elimination diet. And when I mean try, I don't mean for a couple months. I mean a reputable diet lasting at least over 6 months. The work is well worth it. There are many diets to choose from. Our favorite has been the SCD diet but there are plenty of others.
If this is still to much work, look for a good doctor and ask to have full blood work done to see if there are any food sensitivities...don't let them tell you no. We had one pediatrician tell us blood work doesn't show any food issues...a blatant lie. Get some blood work done!
We have seen remarkable improvements from John's diet. Within 24 hours of his diet, all of John's tantrums stopped. He was no longer banging his head into things and screaming. He still has symptoms, but there ARE genetic links that we have to work with too. Therapy and early intervention is so helpful.
Conclusion:
I'm no expert. But I've learned so much this past year I feel like my head is going to explode.
One thing I know for sure, I'd rather have my son's autism symptoms more prevalent than have him die from measles.
Taking away vaccines is not the answer. There are millions of people all over the world dying from the diseases we can prevent. I'm going to be really bold here...everyone should be vaccinated. Not vaccinating is taking a deadly risk. If people are paranoid about giving their children multiple vaccines in one shot, find a doctor who will give the shots separate and space them out further apart.
Society is making a huge mistake by not vaccinating because of ONE controversial study.
Wednesday, September 3, 2008
Autism Red Flags
I decided to write an Autism Red Flags post for family and friends. We hope you read through these warnings signs and learn how detect autism early on.
If diagnosed at a young age, autistic children can benefit from early intervention more than at any other time in their lives. Youth is the opportunity to treat autism. Even high functioning autistic behaviors which are not treated can cause lifelong social struggles.
If you detect any of these symptoms in your child, please seek help. The following red flags can be found on AutismSpeaks.org and FirstSigns.org.
- No big smiles or other warm gestures by 6 months of age. (Make sure the baby is smiling at people, not just things)
- No back and forth sharing of sounds by 9 months of age.
- No babbling by 12 months.
- No words by 16 months.
- No two-word MEANINGFUL phrases by 24 months. (Imitating or repeating what you say does not count)
- Any loss of speech or babbling skills at any age.
Remember, any delay or lack of these social milestones is grounds for immediate evaluation. If you notice anything not quite right about your child's social skills, please seek help. John should have been diagnosed earlier than age 5. We thought something was not quite right about how he interacted with us. We first went to the school district and they immediately picked up on John's delay. To family, please remember there is a genetic link to having autism. Tell your child's pediatrician he or she has a relative with PDD-NOS.
As Adam and I become more familiar with the disorder, we are beginning to notice children at parks, stores and other places who are exhibiting social delay. It is difficult for us to "hold our tongue" when we know how much early intervention helps. We can't just say, "Hey, there's something wrong with your kid."
Instead, we hope our blog will encourage parents to understand the warning signs and ask for help if they need it. I hope you will ALL feel free to ask questions.
Labor Day in New Mexico
Greg showed Adam and John how to work the tractor.
Walking through the field. We all have chigger bites now. We thought Greg looked funny dancing around the house. Now we're dancing too. OUCH!!! It feels like fiberglass all over your body.
Alli picked great fruit from the trees.
We went outside to find a gorgeous double rainbow stretched across the entire sky.
The pictures don't do it justice.
